Really??? I can't handle it. I try to be strong and keep a smile on my face. I go through the motions of life but everyone has a breaking point. Today Rhagan, Aralyn, myself, and my mom went to Dallas for A's neurology appointment. I know she has seizures and I know her medication hasn't helped as much as it should. I just didn't prepare myself for a new diagnosis. Aralyn has Epilepsy. Rhagan was with us so I didn't, couldn't break down. I put my over-sized sunglasses on, shed a few tears, and went to lunch. What else can I do? I don't even know how to respond any more. I can't say "the word" without crying. When someone dies you go through stages. I have done the same having a terminal child. My current stage is anger. I'm not angry at anyone in particular. I'm definetly not angry at God. I'm just angry. I want to know why my child suffers EVERY DAY while other women beat, kill, starve, and abandon their children. Why Aralyn???? Once a lady told me that Aralyn is God's way of punishing me for all of my wrong doing. Another person told me that she is the child of the devil. I see an innocent child of God who is determined to beat the odds. I learned today that more than 300,000 children under the age of 14 have Epilepsy. That's devestating. Children should never suffer! Its not fair!!! I've been told many times that life is not fair but it doesn't help. I'm simply at a loss.
Aralyn Faith vs Trisomy 8
She will win!!!