Really??? I can't handle it. I try to be strong and keep a smile on my face. I go through the motions of life but everyone has a breaking point. Today Rhagan, Aralyn, myself, and my mom went to Dallas for A's neurology appointment. I know she has seizures and I know her medication hasn't helped as much as it should. I just didn't prepare myself for a new diagnosis. Aralyn has Epilepsy. Rhagan was with us so I didn't, couldn't break down. I put my over-sized sunglasses on, shed a few tears, and went to lunch. What else can I do? I don't even know how to respond any more. I can't say "the word" without crying. When someone dies you go through stages. I have done the same having a terminal child. My current stage is anger. I'm not angry at anyone in particular. I'm definetly not angry at God. I'm just angry. I want to know why my child suffers EVERY DAY while other women beat, kill, starve, and abandon their children. Why Aralyn???? Once a lady told me that Aralyn is God's way of punishing me for all of my wrong doing. Another person told me that she is the child of the devil. I see an innocent child of God who is determined to beat the odds. I learned today that more than 300,000 children under the age of 14 have Epilepsy. That's devestating. Children should never suffer! Its not fair!!! I've been told many times that life is not fair but it doesn't help. I'm simply at a loss.
Aralyn Faith vs Trisomy 8
She will win!!!
Are you kidding me? (I am talking about the comments from people.) She is a child of the most High King. Her Daddy(heavenly) loves her. She is not a child of the devil. Rebuke that crap and I will tell you another thing she is not paying for your sin(whatever that may be), no way!!
ReplyDeleteDon't allow people to speak that into your life.
Lord,
I thank you so much for Aralyn and her family. God you told us that Aralyn has a hope and a future. We are believe You for that. I pray that you would give her mama strength to get through every new day and what comes with it. I pray right now you would begin to heal Aralyn. I thank you for what I know you will do for this child Lord. I pray that though 1000 may fall at her side and 10,000 at her right hand no harm will come to Aralyn.(psalm 91) I pray that you would take the seizures from her body, prove the doctors wrong God. Thank you so much for this beautiful and precious life. She was knit together in her mamas womb and you made her perfect God. Give her mom peace and hold her up when she feels she can't go on. Bless them God. Bless them physically, emotionally, financially. Just bless them. Thank you so much. In all these things I pray in Jesus name. Amen.
You know where two or more are gathered together in His name He is there. Matthew 18:20 and
And we know that God causes all things to work together for good to those who love God, to those who are called according to His purpose. Romans 8:28
Hang in there. They say the first year with a SN child is the hardest. I can believe it. One day it will slow down and you wont know what to do without visiting the hospital 6x a week. (We are there right now, so have hope)
Be blessed
Ashlee
http://ourjourneytoadoption.beckfamily143.com/